[1] American Psychiatric Association.DSM-Task Force Arlington VA US.Diagnostic and statistical manual of mental disorders: DSM-V[J].Codas,2013,25(2):191. [2] 邓明昱,劳世艳.自闭症谱系障碍的临床研究新进展(DSM-5新标准)[J].中国健康心理学杂志,2016,24(4):481-490. [3] 刘贤,林穗方,陈文雄,等.中国儿童孤独症谱系障碍患病率Meta分析[J].中国儿童保健杂志, 2018,26(4):402-406,429. [4] Goffman E.Stigma: Notes on the management of spoiled identity[M].Englewood Cliffs,NJ:Prentice Hall,1963:1. [5] Mak WWS, Cheung RYM.Affiliate stigma among caregivers of people with intellectual disability or mental illness[J].J Appl Res Intellect Disabil,2010,21(6):532-545. [6] Minhas A, Vajaratkar V, Divan G, et al.Parents’ perspectives on care of children with autistic spectrum disorder in South Asia - Views from Pakistan and India[J].Int Rev Psychiatry,2015, 27(3):247-256. [7] Kinnear SH, Link BG, Ballan MS, et al.Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives[J].J Autism Dev Disord, 2016,46(3):942-953. [8] Harandi A, Fischbach R.How do Parents Respond to Stigma and Hurtful Words Said to or about their Child on the Autism Spectrum?[J].Austin J Autism and Relat Disabil,2016,2(4):1030-1037. [9] Daniels AM, Como A, Herguner S, et al.Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders[J]. J Autism Dev Disord, 2017,47(8): 2314-2325. [10] Ellen-selman L, Fox F, Aabe N, et al.You are labelled by your children’s disability -A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom[J]. Ethn Health,2018,23(7):781-796. [11] Gary B, Sarma KM, John H, et al.On the spectrum, off the beaten path. A qualitative study of Irish parents’ experiences of raising a child with autism spectrum conditions[J]. Br J Learn Disabil,2018,46(3):182-192. [12] Ruiz-Robledillo N,Sariñana-González P,Pérez-Blasco J, et al.A Mindfulness-Based Program Improves Health in Caregivers of People with Autism Spectrum Disorder: a Pilot Study[J]. Mindfulness, 2015,6:767-777. [13] Lodder A,Papadopoulos C,Randhawa G.SOLACE: A Psychosocial Stigma Protection Intervention to Improve the Mental Health of Parents of Autistic Children-A Feasibility Randomised Controlled Trial[J]. J Autism Dev Disord,2020,50(12):4477-4491. [14] Kwok SY, Leung CL, Wong DF.Marital satisfaction of Chinese mothers of children with autism and intellectual disabilities in Hong Kong[J].J Intellect Disabil Res, 2014,58(12):1156-1171. [15] Chan KKS, Lam CB.Self-stigma among parents of children with autism spectrum disorder[J]. Res Autism Spect Disord, 2018,48:44-52. [16] 华晓慧,杨广学.自闭症儿童家长知晓度调查[J].学术探索,2013(5): 150-153. [17] Zhou T, Wang Y, Yi C.Affiliate stigma and depression in caregivers of children with Autism Spectrum Disorders in China: Effects of self-esteem, shame and family functioning[J].Psychiatry Res,2018,264:260-265. [18] 朱夏律. 上海市自闭症患儿家长的病耻感及应对研究[D].上海:上海师范大学,2019. [19] Recio P,Molero F,Garcia-Ael C,et al.Perceived discrimination and self-esteem among family caregivers of children with autism spectrum disorders (ASD) and children with intellectual disabilities (ID) in Spain: The mediational role of affiliate stigma and social support[J]. Res Dev Disabil, 2020,105:103737. [20] Cantwell J,Muldoon O,Gallagher S.The influence of self-esteem and social support on the relationship between stigma and depressive symptomology in parents caring for children with intellectual disabilities[J]. J Intellect Disabil Res, 2015,59(10): 948-957. [21] Tait K,Mundia L,Fung F.Raising young children with autism spectrum disorders in Hong Kong: the impact of cultural values and stigma on Chinese parents’ coping strategies[J]. International Journal Advances in Social Science and Humanities, 2014,2(1):7-15. [22] Zuckerman KE,Sinche B,Mejia A,et al.Latino parents’ perspectives on barriers to autism diagnosis[J]. Acad Pediatr, 2014,14(3):301-308. [23] Patra S,Kumar Patro B.Affiliate stigma among parents of children with autism in eastern India[J]. Asian J Psychiatr, 2019,44:45-47. [24] Ng CKM,Lam SHF,Tsang STK,et al.The Relationship between Affiliate Stigma in Parents of Children with Autism Spectrum Disorder and Their Children’s Activity Participation[J].Int J Environ Res Public Health, 2020,17(5):1799. [25] Wong CCY, Mak WWS, Liao YH.Self-Compassion: a Potential Buffer Against Affiliate Stigma Experienced by Parents of Children with Autism Spectrum Disorders[J].Mindfulness,2016,7(6):1385-1395. [26] Levinson RM, Starling DM.Retardation and the burden of stigma[J].Deviant Behav, 1981,2(4):371-390. [27] Crandall CS.AIDS-related stigma and the lay sense of justice[J].Contemp Soc Psychol,1991,15: 66-67. [28] Mickelson KD, Wroble M, Helgeson VS.“Why My Child?”: Parental Attributions for Children’s Special Needs[J]. J Appl Soc Psychol,1999,29(6):1263-1292. [29] Habayeb S, Dababnah S, John A, et al.Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder[J].J Autism Dev Disord,2020,50(1):51-62. [30] Chan KKS, Mak WWS.The content and process of self-stigma in people with mental illness[J]. Am J Orthopsychiatry,2017,87(1): 34-43. [31] Chan KKS, Lam CB.Trait Mindfulness Attenuates the Adverse Psychological Impact of Stigma on Parents of Children with Autism Spectrum Disorder[J]. Mindfulness,2017,8(4):984-994. [32] Mitter N, Ali A, Scior K.Stigma experienced by family members of people with intellectual and developmental disabilities: multidimensional construct[J].BJPsych Open,2018,4(5):332-338. [33] Obeid R, Daou N, Denigris D, et al.A Cross-Cultural Comparison of Knowledge and Stigma Associated with Autism Spectrum Disorder Among College Students in Lebanon and the United States[J]. J Autism Dev Disord,2015,45(11):3520-3536. [34] Gillespie-lynch K, Brooks PJ, Someki F, et al.Changing College Students’ Conceptions of Autism: An Online Training to Increase Knowledge and Decrease Stigma[J]. J Autism Dev Disord,2015,45(8):2553-2566. [35] Lovell B,Wetherell MA. Affiliate Stigma, Perceived Social Support and Perceived Stress in Caregivers of Children With Autism Spectrum Disorder: A Multiple Mediation Study[J].Arch Psychiatr Nurs,2019,33(5):31-35. |