天津护理 ›› 2023, Vol. 31 ›› Issue (5): 514-518.DOI: 10.3969/j.issn.1006-9143.2023.05.003

• 论著 • 上一篇    下一篇

弥漫大 B 细胞淋巴瘤生存者过渡期真实体验的质性研究

冯莉霞 冯丽娜 贺瑾   

  1. (天津医科大学肿瘤医院 国家恶性肿瘤临床医学研究中心 天津市“肿瘤防治”重点实验室 天津市恶性肿瘤临床医学研究中心, 天津 300060)
  • 出版日期:2023-10-28 发布日期:2023-10-26
  • 基金资助:
    天津市护理学会科研课题(tjhlky2021YB03);天津市医学重点学科建设项目(TJYXZDXK-011A)

Qualitative study on the real experience of transitional period in survivors of diffuse large B-cell lymphoma

FENG Lixia, FENG Lina, HE Jin   

  1. (Tianjin Medical University Cancer Institute and Hospital, Tianjin 300060)
  • Online:2023-10-28 Published:2023-10-26

摘要: 目的:探讨弥漫性大 B 细胞淋巴瘤生存者过渡期的真实体验,为进一步提高弥漫性大 B 细胞淋巴瘤生存者生活质量提供参考。方法:采用目的抽样法,于 2021 年 8—12 月,对结束治疗和复诊的 14 例弥漫性大 B 细胞淋巴瘤患者进行半结构式访谈,采用 Colaizzi 7 步分析法分析资料。 结果:弥漫性大 B 细胞淋巴瘤生存者过渡期真实体验可归纳为 3 个主题:心理体验主题包括生命意义感增强、复发恐惧水平高及个体自信心下降,生理体验主题包括疲乏、骨髓功能恢复不佳及远期症状困扰,社会体验主题包括努力生活、恢复常态及寻求专业支持与帮助。 结论:弥漫性大 B 细胞淋巴瘤生存者过渡期存在生理、心理及社会方面的多重体验,医疗卫生机构应加强对过渡期生存者的关注,给予积极有效措施,帮助其顺利过渡至生存期。

关键词: 弥漫性大 B 细胞淋巴瘤, 生存者, 过渡期, 真实体验

Abstract:

Objective: To explore the real experience of transitional period in survivors of diffuse large B-cell lymphoma, so as to provide reference for further improving the quality of life of survivors of diffuse large B-cell lymphoma. Methods: By purposive sampling method, a semi-structured interview was conducted in 14 patients with diffuse large B-cell lymphoma who had completed treatment and had follow-up visits from August to December 2021. The data were analyzed using the Colaizzi 7-step analysis method. Results: The real experience of survivors of diffuse large B-cell lymphoma during transitional period was summarized into three themes such as psychological experience themes including increased sense of life, high levels of fear of recurrence, and decreased individual confidence; physiological experience themes including fatigue, poor recovery of bone marrow function, and long-term symptom distress; social experience themes including striving to live, returning to normalcy, and seeking professional support and assistance. Conclusion: Survivors of diffuse large B-cell lymphoma during transitional period have multiple physiological, psychological, and social experiences. Medical institutions should strengthen attention to survivors and provide active and effective measures to help survivors of diffuse large B-cell lymphoma transition smoothly to survival.

Key words: Diffuse large B-cell lymphoma, Survivor, Traditional period, Real experience