天津护理 ›› 2025, Vol. 33 ›› Issue (4): 398-402.DOI: 10.3969/j.issn.1006-9143.2025.04.004

• 论著 • 上一篇    下一篇

恶性骨肿瘤患者经济毒性体验及应对策略的质性研究

张亚平 魏利荣 胡文雪 刘晔 毛真真   

  1. (天津医科大学肿瘤医院 国家恶性肿瘤临床医学研究中心 天津市肿瘤防治重点实验室 天津市恶性肿瘤临床医学研究中心 ,天津 300060)
  • 出版日期:2025-08-28 发布日期:2025-08-15
  • 基金资助:
    天津市医学重点学科建设项目(TJYXZDXK-011A)

A qualitative study of financial toxicity experience and coping strategies in patients with malignant bone tumors

ZHANG Yaping, WEI Lirong, HU Wenxue, LIU Ye, MAO Zhenzhen   

  1. (Tianjin Medical University Cancer Institute and Hospital, Tianjin 300060)
  • Online:2025-08-28 Published:2025-08-15

摘要: 目的:了解恶性骨肿瘤患者经济毒性体验及应对策略。方法:采用现象学研究法,按照目的抽样,于 2024 年 2 月至 5 月选取天津市某三级甲等医院的 13 例恶性骨肿瘤患者进行半结构式访谈,运用 Colaizzi 七步分析法分析资料。结果:共提炼出经济毒性体验(主客观感知经济负担重、恐惧疾病进展心理功能失调、扰乱家庭原有生活节奏)、建设性应对策略(重返工作岗位增加收入、缩减开支减少成本、多元主体协同助力经济减负、优化调整医保政策)2 个主题以及 7 个亚主题。结论:医护人员应重视恶性骨肿瘤患者客观经济负担及主观经济困扰,引导患者建立积极心理建设、激发家庭复原潜力、整合社会力量、链接资源、构建支持网络。同时,相关政府部门应进一步优化调整医保政策,协同改善患者经济毒性现状。

关键词: 恶性骨肿瘤, 经济毒性, 应对策略, 质性研究, 护理

Abstract: Objective: To understand the financial toxicity experience and coping strategies of patients with malignant bone tumors. Methods: The phenomenological research method was used to conduct semi-structured interviews with 13 patients with malignant bone tumors selected from a grade A tertiary hospital in Tianjin from February to May 2024 according to the purposive sampling method. The Colaizzi 7-step analysis method was used to analyze the data. Results: Two themes and seven sub-themes were summarized including financial toxicity experience (subjective and objective perception of heavy economic burden, fear of illness progression psychological dysfunction, and disruption of the famil's life rhythm), and constructive coping strategies (returning to work to increase income, reducing expenses and reducing costs, multi-subject cooperation to help reduce economic burden, and optimizing and adjusting medical insurance policies). Conclusion: Healthcare professionals should pay attention to the objective economic burden and subjective economic distress of patients with malignant bone tumors, guide patients to establish positive psychological construction, stimulate family resilience potential, integrate social forces, link resources, and build support networks. At the same time, relevant government departments should further optimize and adjust health insurance policies to relieve the financial toxicity of patients.

Key words: Malignant bone tumors, Financial toxicity, Coping strategies, Qualitative study, Nursing