关键词: 膀胱癌, 社会疏离, 质性研究

Abstract: Objective: To describe and analyze the experience of social isolation in patients with bladder cancer, and to provide evidence for developing intervention strategies for social isolation in these patients. Methods: A phenomenological research approach was used. Fourteen patients with bladder cancer, who visited a grade Ⅲ and first-class hospital in Tianjin from August 2023 to November 2023, were selected as the study subjects. Face-to-face semi-structured interviews were conducted, and Colaizzi′s seven-step method was used to synthesize and extract themes. Results: Two main themes were identified, including subjective social isolation and objective social isolation. Seven sub-themes emerged, including feelings of loneliness, a sense of burden, negative perceptions of threats, feelings of life disparity or numbness, changes in interests and hobbies, decline in social engagement, and the formation of a family cocoon. Conclusion: The experience of social isolation in bladder cancer patients mainly includes subjective and objective aspects of social isolation. Healthcare providers should develop a social network for bladder cancer patients, guided by family involvement and personal interests, by focusing on individualized care, family support, and reallocation of social information resources.

Key words: Bladder cancer, Social isolation, Qualitative study