Abstract: Objective: To study the experience of self-image change in patients with inflammatory bowel disease, so as to provide a reference for developing reasonable and effective intervention strategies to improve patients’ self-image. Methods: A total of 11 patients with inflammatory bowel disease admitted to a tertiary Class A hospital in Tianjin were included by the phenomenological research method. The patients received semi-structured in-depth interviews,and the data were analyzed by Colaizzi 7-step analysis method. Results: Four themes were summarized including multiple negative emotions, difficult to pursue, lack of understanding and acceptance, and gain from disease. Conclusion: Patients with inflammatory bowel disease have positive self-image and more serious negative self-image. Medical staff should pay attention to provide psychological counseling for patients with serious negative self-image, strengthen health education, and assist social forces to improve patients’ self-image, so as to promote disease recovery.

Key words: Inflammatory bowel disease, Self-image, Experience

摘要： 目的：了解炎症性肠病患者自我形象改变体验，以期为改善患者自我形象制定合理的干预策略提供参考。方法：采用现象学研究方法对天津市某三级甲等医院收治的11例炎症性肠病患者进行半结构式深入访谈，运用Colaizzi 7步分析法对资料进行整理分析。结果：共归纳提炼4个主题，存在多种负性情绪、难以有所追求、不被理解接受、患病后有所收获。结论：炎症性肠病患者存在积极自我形象和较为严重的负性自我形象，医护人员应注重负性自我形象患者心理疏导，加强健康教育，协助社会力量，改善其自我形象，促进疾病康复。

关键词: 炎症性肠病, 自我形象, 体验