Abstract: Objective: To describe and analyze the experience of social isolation in patients with bladder cancer, and to provide evidence for developing intervention strategies for social isolation in these patients. Methods: A phenomenological research approach was used. Fourteen patients with bladder cancer, who visited a grade Ⅲ and first-class hospital in Tianjin from August 2023 to November 2023, were selected as the study subjects. Face-to-face semi-structured interviews were conducted, and Colaizzi′s seven-step method was used to synthesize and extract themes. Results: Two main themes were identified, including subjective social isolation and objective social isolation. Seven sub-themes emerged, including feelings of loneliness, a sense of burden, negative perceptions of threats, feelings of life disparity or numbness, changes in interests and hobbies, decline in social engagement, and the formation of a family cocoon. Conclusion: The experience of social isolation in bladder cancer patients mainly includes subjective and objective aspects of social isolation. Healthcare providers should develop a social network for bladder cancer patients, guided by family involvement and personal interests, by focusing on individualized care, family support, and reallocation of social information resources.

Key words: Bladder cancer, Social isolation, Qualitative study

摘要： 目的：描述和分析膀胱癌患者社会疏离的体验，为构建膀胱癌患者社会疏离干预策略提供依据。方法：采用现象学研究方法，2023 年8月至2023年11月选取在天津市某三级甲等医院就诊的14例膀胱癌患者作为研究对象，进行面对面半结构式访谈，采用Colaizzi 7 步分析法归纳并提炼主题。结果：共提炼出主观性社会疏离和客观性社会疏离2个主题，孤独感、负担感、负面感知威胁、生活落差感或麻木感、兴趣爱好改变、社交水平下降、家庭茧房形成7个亚主题。结论：膀胱癌患者社会疏离体验主要包括主观性社会疏离和客观性社会疏离两方面。医护人员需从患者个体照护、家庭照护和社会信息资源重配置等角度建立以家庭和兴趣爱好为导向的膀胱癌患者社交网络。

关键词: 膀胱癌, 社会疏离, 质性研究