关键词: 社会疏离, 原发性肝癌, 配偶, 质性研究, 护理

Abstract: Objective: To explore the experiences of spouses whose husband or wife was diagnosed with hepatocellular carcinoma combined with HBV positive. Methods: A qualitative descriptive design was adopted. A total of 15 spouses were purposefully recruited and interviewed using a semi-structured interview guide in a Class A tertiary cancer hospital in Tianjin, China. The Colaizzi seven-step analysis method was used to analyze the data. Results: Two themes and seven sub-themes were extracted from the data, including manifestations of social isolation (loneliness and powerless, social avoidance); reasons for social isolation(little support, caring role needs, public discrimination, self-discrimination and altruism). Conclusion: Spouses of young and middle-aged cancer patients who were diagnosed with hepatocellular carcinoma combined with HBV positive experience social isolation in the process of providing care to the patients. Clinical nursesare strongly advised to pay attention to this population and take actions to relieve their social isolation, guiding them to hold positive attitudes towards HBV and hepatocellular carcinoma, reducing self-iscrimination, public discrimination and social avoidance. At the same time, close family members are expected to continuously support the spouses of cancer patients who were diagnosed with hepatocellular carcinoma combined with HBV positive.

Key words: Social isolation, Hepatocellular carcinoma, Spouse, Qualitative study, Nursing