关键词: 主要照顾者, 照护体验, 质性研究, Meta 整合

Abstract: Objective: To systematically evaluate the care experience of the primary caregivers of children with epilepsy, and to improve the basis for making care plans that meet the needs of caregivers. Methods: PubMed, Embase, the Cochrane Library, CNKI, Wanfang and other databases were searched from inception of databases to April 14, 2022. The Australian JBI quality evaluation standard(2016) and the aggregative integration method were used to evaluate the literature quality and integrate the results. Results: A total of 16 literatures were included, 65 results were extracted, 11 new categories were summarized, and 3 integrated results were synthesized. Integration outcome 1 was the negative characteristics of the disease and the enormous physical and mental pressure of caregivers which had an impact on family functions and daily life, and promoted caregivers to over-protect their children and changed their values; Integration outcome 2 was that caregivers needed support from family members, had limited knowledge of disease and care, and craved social and medical support; Integration outcome 3 was that caregivers actively adjusted themselves to cope with illness and grew from illness care. Conclusion: Medical staffs should pay attention to the care needs and psychological experience of caregivers of epileptic children, provide multi-directional support, assist them to play the role of caregivers, and ensure the healthy growth of children.

Key words: Epilepsy, Primary caregiver, Care experience, Qualitative research, Meta-analysis